I’ve added my name to a cross-party letter to call for UK Health Secretary, Matt Hancock MP, and Vertex CEO, Jeff Leiden, to meet to agree a deal to secure life changing drugs for people with Cystic Fibrosis.
In August, the Scottish Medicines Consortium will make recommendations to NHS Scotland on the routine use of Orkambi and Symkevi. Progress is being made in Scotland and it must be matched in England.
Cystic Fibrosis knows no borders. For children like my granddaughter Saoirse, and the many people affected across Scotland and the rest of the UK, access must be widened.