SCOTTISH GOVERNMENT SECURES DEAL FOR ACCESS TO LIFECHANGING TREATMENT
Motherwell and Wishaw MP, Marion Fellows, who’s three-year-old granddaughter has Cystic Fibrosis, has welcomed the new deal struck by the Scottish Government to allow access to lifechanging drugs Orkambi and Symkevi.
The deal was confirmed last week by the independent Scottish Medical Consortium which will see the drug be made available to 400 of the 900 people in Scotland with Cystic Fibrosis.
Two deals were previously rejected, but the Scottish Government persisted and secured a five-year deal and a “confidential discount” with producer, Vertex, on its third attempt.
Marion’s granddaughter, Saoirse, has Cystic Fibrosis and could benefit from the new drugs.
Commenting, Mrs Fellows said:
“As the Granny of three-year-old Saoirse, I know personally the impact CF can have on families. I’m so glad that so many families across Scotland will benefit from these new drugs. Hundreds will be able to lead longer and fuller lives.
“Saoirse and other people like her and their families have inspired and motivated me to join the fight for access to these lifechanging drugs.
“The Scottish Government never let up in discussions and is leading the way in CF treatment. But CF knows no borders. The UK Government must follow the Scottish Government’s lead and make it available to sufferers in England also.
“This is such a big moment for hundreds of families. They have been relentless and inspiring in their efforts to see these drugs become available in Scotland.”