WEAR IT YELLOW FOR CYSTIC FIBROSIS
Today is Wear it Yellow Day to raise awareness of Cystic Fibrosis. I spoke about my experience as a granny of my beautiful granddaughter, Saoirse, who has Cystic Fibrosis. I…
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CYSTIC FIBROSIS AND ORKAMBI
As the grandmother of someone with Cystic Fibrosis – my beautiful granddaughter Saoirse – I know how it can affect people. In Scotland, interim access has been granted to life…
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Orkambi in NHS England
I made an intervention last night in a debate on Orkambi in NHS England. I would love to see its expansion all across the UK so that we can save…
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MP in plea to transform health care to support those with cystic fibrosis
FULL STORY: MP in plea to transform health care to support those with cystic fibrosis Thank you to everyone for your kind words of support since the debate on Orkambi in…
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This Week (2018) #5
Monday 19th March On Monday, Marion was in Westminster undertaking a number of meetings & parliamentary duties, as well as speaking at the debate on Orkambi and Cystic Fibrosis – a topic…
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MP CALLS FOR CYSTIC FIBROSIS TREATMENT TO BE MORE READILY AVAILABLE
MARION TALKS OF FAMILY EXPERIENCE OF CYSTIC FIBROSIS IN PARLIAMENT Marion Fellows, MP for Motherwell and Wishaw, spoke of her family’s experience in a Parliamentary debate on Cystic Fibrosis (CF)…
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Orkambi & Cystic Fibrosis Debate
Yesterday I took part in a debate on Orkambi and Cystic Fibrosis and spoke about my personal experience of it in my family. The processes by which medication is negotiated…
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This Week #53
Monday 19th June 2017 The contempt the Tories have for democracy. Rejected by voters, but given a cushy public salary anyway. #JobsForTheBoys https://t.co/A0lAqzvMHb — Marion Fellows (@marionfellows) June 19, 2017…
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Wearing yellow for the Cystic Fibrosis Trust!
Today I’m wearing yellow. Not because I’m SNP, but to raise awareness and funds for the Cystic Fibrosis Trust. #CSYelfie Imagine a world where people with cystic fibrosis (CF) can live…
