SCOTTISH GOVERNMENT SECURES DEAL FOR ACCESS TO LIFECHANGING TREATMENT Motherwell and Wishaw MP, Marion Fellows, who’s three-year-old granddaughter has Cystic Fibrosis, has welcomed the new deal struck by the Scottish…
MARION FELLOWS RE-SELECTED AS SNP CANDIDATE FOR MOTHERWELL & WISHAW Marion Fellows, MP for Motherwell and Wishaw, was today re-selected by local branches as the SNP’s candidate for the next…
For the people with Cystic Fibrosis who could benefit from life-changing drugs – Orkambi and Symkevi – Vertex must revise their offer to the Scottish Medical Consortium. Cystic Fibrosis knows…
As most of you will know I have been championing access to Orkambi and Symkevi particularly since receiving the devastating news my granddaughter, Saoirse, has Cystic Fibrosis. Yesterday’s decision made…
I’ve added my name to a cross-party letter to call for UK Health Secretary, Matt Hancock MP, and Vertex CEO, Jeff Leiden, to meet to agree a deal to secure…
Today is Wear it Yellow Day to raise awareness of Cystic Fibrosis. I spoke about my experience as a granny of my beautiful granddaughter, Saoirse, who has Cystic Fibrosis. I…
As the grandmother of someone with Cystic Fibrosis – my beautiful granddaughter Saoirse – I know how it can affect people. In Scotland, interim access has been granted to life…
I made an intervention last night in a debate on Orkambi in NHS England. I would love to see its expansion all across the UK so that we can save…
FULL STORY: MP in plea to transform health care to support those with cystic fibrosis Thank you to everyone for your kind words of support since the debate on Orkambi in…
Monday 19th March On Monday, Marion was in Westminster undertaking a number of meetings & parliamentary duties, as well as speaking at the debate on Orkambi and Cystic Fibrosis – a topic…
