Categories
News

MARION HAILS CYSTIC FIBROSIS DRUG BREAKTHROUGH

SCOTTISH GOVERNMENT SECURES DEAL FOR ACCESS TO LIFECHANGING TREATMENT

Motherwell and Wishaw MP, Marion Fellows, who’s three-year-old granddaughter has Cystic Fibrosis, has welcomed the new deal struck by the Scottish Government to allow access to lifechanging drugs Orkambi and Symkevi.

The deal was confirmed last week by the independent Scottish Medical Consortium which will see the drug be made available to 400 of the 900 people in Scotland with Cystic Fibrosis.

Two deals were previously rejected, but the Scottish Government persisted and secured a five-year deal and a “confidential discount” with producer, Vertex, on its third attempt.

Marion’s granddaughter, Saoirse, has Cystic Fibrosis and could benefit from the new drugs.

Commenting, Mrs Fellows said:

“As the Granny of three-year-old Saoirse, I know personally the impact CF can have on families. I’m so glad that so many families across Scotland will benefit from these new drugs. Hundreds will be able to lead longer and fuller lives.

“Saoirse and other people like her and their families have inspired and motivated me to join the fight for access to these lifechanging drugs.

“The Scottish Government never let up in discussions and is leading the way in CF treatment. But CF knows no borders. The UK Government must follow the Scottish Government’s lead and make it available to sufferers in England also.

“This is such a big moment for hundreds of families. They have been relentless and inspiring in their efforts to see these drugs become available in Scotland.”

Categories
News

MP MARION READY TO FIGHT ELECTION AND BRING DOWN TORIES

MARION FELLOWS RE-SELECTED AS SNP CANDIDATE FOR MOTHERWELL & WISHAW

Marion Fellows, MP for Motherwell and Wishaw, was today re-selected by local branches as the SNP’s candidate for the next Westminster General Election and says she is ready to fight a snap election to bring down the Tories.

Marion says she will continue to prioritise the same three issues she always has: defending Scottish sovereignty; opposing austerity and supporting investment in jobs and services; and halting the Tories’ Brexit plans.

Marion has spearheaded campaigns to protect the Post Office network locally and nationally; making the Child Maintenance Service fairer for families; raising awareness of Autistic Spectrum Conditions; and improve access to lifechanging Cystic Fibrosis drugs.

Marion served as a Wishaw Councillor from 2012 to 2015 when she was elected as the Member of Parliament for Motherwell and Wishaw and re-elected again in 2017.

Commenting, Marion Fellows said:

“It has always been a privilege to fight for the wonderful communities in Motherwell, Wishaw and Bellshill. I’m elated my branch has re-selected me as their candidate. The SNP is ready to fight an election at any time and bring down the Tory Government.

“We need to halt Brexit so we can continue trading to protect jobs and services. We need to end austerity and invest in people and our economy. We need to defend the will of Scotland’s people and Parliament and stop the Westminster power grab.

“Corbyn’s Labour and the Tories are in engaged in full-blown civil wars. Labour has failed to form a coherent position on Brexit and the Tories’ position is tearing communities apart. The SNP has a clear plan to stop austerity and Brexit.

“I know the struggles of local, hardworking people. Johnson and his pals don’t. It will be ordinary families, not the Tories, who will pay the price of a no deal Brexit and continued austerity.”E

Categories
News

DAY OF ACTION FOR CYSTIC FIBROSIS DRUGS

For the people with Cystic Fibrosis who could benefit from life-changing drugs – Orkambi and Symkevi – Vertex must revise their offer to the Scottish Medical Consortium.

Cystic Fibrosis knows no borders, but there is a real opportunity for progress on treatment in Scotland. Vertex must make a more reasonable offer so that it can be accepted by the SMC.

I want to provide my support to those rallying outside Vertex’s HQ in London. The individuals and families affected have been fantastic advocates for the campaign and demonstrating just how much access would mean to them.

We are so close to a deal and I am hopeful that one is finally agreed.

Categories
News

DISAPPOINTMENT OVER CYSTIC FIBROSIS DRUG DECISION

As most of you will know I have been championing access to Orkambi and Symkevi particularly since receiving the devastating news my granddaughter, Saoirse, has Cystic Fibrosis.

Yesterday’s decision made by the Scottish Medicines Consortium to deny access came as a disappointing blow to sufferers and their families. On The Nine last night I discussed my disappointment.

The good news is the Scottish Government remain in discussions with Vertex and I remain hopeful this will result in a positive outcome.

I will be writing to the Health Secretary Jeane Freeman and will continue in Westminster to work with others cross-party to open up access to these life changing drugs in the belief that this situation will be resolved. I’m sure at the end of the day the Scottish government and Vertex can come to some good agreement that will change this disappointing decision made by the Scottish Medicines Consortium.

Categories
News

CALLS FOR ENGLAND TO MATCH SCOTLAND’S PROGRESS ON CYSTIC FIBROSIS SUPPORT

I’ve added my name to a cross-party letter to call for UK Health Secretary, Matt Hancock MP, and Vertex CEO, Jeff Leiden, to meet to agree a deal to secure life changing drugs for people with Cystic Fibrosis.

In August, the Scottish Medicines Consortium will make recommendations to NHS Scotland on the routine use of Orkambi and Symkevi. Progress is being made in Scotland and it must be matched in England.

Cystic Fibrosis knows no borders. For children like my granddaughter Saoirse, and the many people affected across Scotland and the rest of the UK, access must be widened.

Categories
News

WEAR IT YELLOW FOR CYSTIC FIBROSIS

Today is Wear it Yellow Day to raise awareness of Cystic Fibrosis.

I spoke about my experience as a granny of my beautiful granddaughter, Saoirse, who has Cystic Fibrosis.

I hope that the Scottish Medical Consortium will increase access to drugs like Orkambi to help people with the condition. And I hope that people across the UK also get access. There is no border for Cystic Fibrosis.

Full story here.

Categories
News

CYSTIC FIBROSIS AND ORKAMBI

As the grandmother of someone with Cystic Fibrosis – my beautiful granddaughter Saoirse – I know how it can affect people. In Scotland, interim access has been granted to life changing drugs. I hope that the rest of the UK will follow suit.

Categories
News

Orkambi in NHS England

I made an intervention last night in a debate on Orkambi in NHS England. I would love to see its expansion all across the UK so that we can save and improve the lives of those suffering from Cystic Fibrosis.

I also paid tribute to Scotland Parents CF Support Group for the support they have offered me and families across Scotland.

Categories
News

MP in plea to transform health care to support those with cystic fibrosis

FULL STORY: MP in plea to transform health care to support those with cystic fibrosis

Thank you to everyone for your kind words of support since the debate on Orkambi in Parliament.

Those with Cystic Fibrosis should be able to access the treatment they need unhindered.

Thank you to all who signed the petition and who support the campaign.

Categories
News

This Week (2018) #5

Monday 19th March

On Monday, Marion was in Westminster undertaking a number of meetings & parliamentary duties, as well as speaking at the debate on Orkambi and Cystic Fibrosis – a topic of particular personal interest to the MP:



Tuesday 20th March



Wednesday 21st March

As always, Wednesday was another busy day at the House of Commons for Marion, involving numerous meetings, briefings & attending Prime Minister’s Questions.



Thursday 22nd March

On Thursday, Marion took the opportunity to raise the issue of the Redundancy Modification Order review with the Leader of the House. The review has negatively impacted on Marion’s constituents, and people across the United Kingdom:

Later that day, Marion also featured in a debate on the NHS and Brexit, highlighting the consistently great work undertaken at University Hospital Wishaw:



Friday 23rd March

Marion was back in the constituency office in Motherwell on Friday, hosting interviews for the Constituency Assistant vacancy on her team – the standard of all those who applied was incredibly high!