Duchenne Awareness Month

June is Duchenne Awareness Month.

Duchenne muscular dystrophy (DMD) is a genetic disorder characterised by progressive muscle degeneration and paralysis. Symptoms begin in early childhood, usually between ages 3 and 5, and the condition primarily affects boys, although in very rare cases it can also affect girls.

Despite being a condition that many may not have heard of, it is estimated that there are 20,000 male births affected every year worldwide, and there are around 2,500 people in the UK living with DMD today.

Until relatively recently, boys with DMD usually did not survive much beyond their teen years. Thanks to advances in cardiac and respiratory care, survival into the early 30s is now becoming more common, and there are cases of men living into their 40s and 50s. But there is still so much work to be done.

To find out more about Duchenne muscular dystrophy (DMD), visit: